Archives
As I look back at these posts that I wrote before I started blogging, I see how scary things were. I never got scared “in the moment” of an episode. I would always hold on til the episode ended and then I would lose it. I wanted to be strong for my Brandon and wanted him to feel safe and that I was taking care of him the best I knew how…. Read More
Brent has a hole in his G-tube! I have been on the phone talking to 10 different people who have no clue of what they’re doing …….. ugh!!!!!!! You would think after having a feeding tube for 14 years that it would be a piece of cake dealing with these companies… *SCREAM* #feedingtubeissues [ it never ends…. ]
Brently Matthew What I love most is that he smiles through it all. The good, the bad, & the ugly. He has attitude and loves to sing and play his instruments. He loves Nascar and Alabama football. He loves to sling his food at me when we are
Tonight, I sit here thinking of all the what if’s, what could have been’s, and I don’t know why I allow my mind to go in that direction. Brent is 15 years old. He should have a permit and learning how to drive. He should have friend’s over spending the night, coming and going and having a busy schedule of some kind.
SURVIVING TWO THRIVING...with L1cam Syndrome 