Tag Archives: thriving

“I’ll Run with You”

  The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels.  When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys. 

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Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times.   Some say it’s whatever road you choose to follow.  Whether good or bad, YOU choose!  I … Continue reading

Posted in A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness | Tagged , , , , , , , , , , , , , , , , | 1 Comment

Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)? It is what my child has been diagnosed with. The medical term is a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process … Continue reading

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My Kind Of RARE

 Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love two special RARE people in this life.  This RARE condition is a chromosome disorder of the L1cam gene and it’s a … Continue reading

Posted in Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

Blind

I think I am drowning in my own sorrow.  I’m the lady who can handle everything that comes her way…. ya, NOT so much! I am drowning.  I pick myself up off the ground every single day hoping that I … Continue reading

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God’s Plan

Today has been another “ok” day.  Brent is so ready to get back in the swing of things with going to school and doing his routine.  He loves a schedule and if it gets off track, he does not like … Continue reading

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Hope Anchors The Soul

I am numb.  I don’t have any words of wisdom or encouragement for myself or to give anyone this very minute. My brain is trying to stay positive but in my heart I know that another battle is about to … Continue reading

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