SURVIVING TWO THRIVING...with L1cam Syndrome

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  The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels.  When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys. 

We are definitely battling with the feeding tube on a daily basis.  But, what’s new?  I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha.  It has been 18 years. What is up with that? I should have a medical degree of some sort by now.  Don’t you agree?

I think I am drowning in my own sorrow.  I’m the lady who can handle everything that comes her way…. ya, NOT so much! I am drowning.  I pick myself up off the ground every single day hoping that I have made some sort of difference in a person’s life.  My son’s life. His life matters! Brently’s life does matter!  He has a purpose! God says he does. (Jer. 29:11)

This was an amazing night.  Several Southern Gospel Groups, including Saving Faith (the group I sang with), got together and had a benefit singing to raise money for the David Zills Memorial Fund for ALS.   I enjoyed singing with Broken Vessels that night several years ago.  I came across this video and wanted to share. “In The Garden” ENJOY!

Brently Matthew What I love most is that he smiles through it all.  The good, the bad, & the ugly. He has attitude and loves to sing and play his instruments.  He loves Nascar and Alabama football.  He loves to sling his food at me when we are

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