Archives

“I’ll Run with You”

The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels. When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys.

Category: A Life Worth Living Tags: #l1cam, #l1strong, #thankful, Faith, Heaven, Hope, I'll Run with You, Joy, L1syndrome, Laughter, Love, love of a child, Mom, Mommy Time, Music, Seizures, Special Needs, surviving, thriving, X-linked

Today has been a stress free day, Imagine that! I have done absolutely nothing. HaHa! I have so much on my To-Do List but I took advantage of this beautiful day and decided to just sit back and laugh, play, sing, and lay around and enjoy Brently and my husband.

Category: Feedings, Gastrostomy Tags: #l1strong, Encouragement, Joy, Love, Mommy Time, Special Needs, stress

L1 Family

I never thought I would see the day of being able to meet other families that walk in my shoes daily. For so long I begged and pleaded with God to help me find someone…surely I can’t be the only one in the world?

Category: Disability, L1syndrome, L1 Families, L1 Syndrome, Parenting, Special Needs, L1Syndrome, Uncategorized Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, #thankful, awareness, better me, Chromosomes, diagnosis, disability, Encouragement, Faith, family, friendships, fun times, genetics, Hope, Hydrocephalus, Joy, Laughter, life, living, Love, love of a child, Mom, Mommy Time, PTSD, Seizures, sick, Special Needs, surviving, thriving, X-linked

Beautiful smiles that light up MY world

Brently Matthew What I love most is that he smiles through it all. The good, the bad, & the ugly. He has attitude and loves to sing and play his instruments. He loves Nascar and Alabama football. He loves to sling his food at me when we are

Category: Uncategorized Tags: #l1cam, #l1strong, #thankful, awareness, Encouragement, Faith, family, fun times, Hardship, Hope, Joy, L1syndrome, Laughter, Mom, Mommy Time, Music, Special Needs, surviving, thriving