SURVIVING TWO THRIVING...with L1cam Syndrome

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With every single second of life, a person may ask the question; “Do you find beauty in your brokenness?” Even though smiling on the outside, doesn’t even paint a picture of what is truly coming from the inside. Somewhere in the world, a new mom and dad’s heart is shattering into a million pieces.  It is hard living in a world where very little knowledge is known of a diagnosis that is… Read More

I can’t believe that it’s been five years since I held him in my arms.  He ran to Jesus at 8:30pm this very night. I believe he would have skipped over the crawling and/or walking stage as he entered Heaven and just took off running.  Fourteen years of being a paraplegic, I definitely would.I can just hear the shouting as he entered the gates.

  The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels.  When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys. 

  We all want to be accepted for who we are in this life.  Right? As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than at church) Ha Ha! Some of Brent’s classmates, his teacher and coach, all came over to our home, as well as the local newspaper, and presented him with a team jersey. Go… Read More

Budd–Chiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal pain. It is caused by blood clots that completely or partially block blood flow from the liver. It usually occurs when a clot narrows or blocks the hepatic veins, which carry blood out of the liver.

So Greatly Loved

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Hope For The Broken Hearted

Blog by Debbie Kay, Founder of Hope For The Broken Hearted Ministries