Tag: Love

Missing You: God’s Timing

I can’t believe that it’s been five years since I held him in my arms.  He ran to Jesus at 8:30pm this very night. I believe he would have skipped over the crawling and/or walking stage as he entered Heaven and just took off running.  Fourteen years of being a paraplegic, I definitely would.I can just hear the shouting as he entered the gates.

“I’ll Run with You”

 

The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels.  When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys. 

Acceptance and the LOVE of Football

 

We all want to be accepted for who we are in this life.  Right?

As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than at church) Ha Ha! Some of Brent’s classmates, his teacher and coach, all came over to our home, as well as the local newspaper, and presented him with a team jersey. Go Lions!

Budd-Chiari Syndrome

BuddChiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal pain. It is caused by blood clots that completely or partially block blood flow from the liver. It usually occurs when a clot narrows or blocks the hepatic veins, which carry blood out of the liver.

My Kind Of RARE

 Loving2016-02-09 17.05.06 someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love 2 special RARE people in this life.  This RARE condition is a Chromosome and Neurological Disorder called L1 Syndrome. The ins and outs of daily struggles makes it worthwhile when the smallest little grin comes across their face or hearing the laughter and seeing the silly faces they make when they think no one is watching or listening or even signing a new sign after teaching it to them over and over and over again and you feel like your not winning this battle and all of a sudden…. he signs….

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