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Brently Matthew What I love most is that he smiles through it all. The good, the bad, & the ugly. He has attitude and loves to sing and play his instruments. He loves Nascar and Alabama football. He loves to sling his food at me when we are
This guy right here made me the mom I am today. With multiple brain surgeries, feeding tubes, feeding pumps, hip surgery, multiple tendon releases in each leg and foot, (VNS) Vagus Nerve surgery, 2 spinal infusions, surgery on each thumb (inward thumb/visibility of L1 syndrome), Budd-Chiari Syndrome, and numerous seizures that more than 50% of them were life threatening. He was on life support during those times. I can truly say that this child… Read More
Tonight, I sit here thinking of all the what if’s, what could have been’s, and I don’t know why I allow my mind to go in that direction. Brent is 15 years old. He should have a permit and learning how to drive. He should have friend’s over spending the night, coming and going and having a busy schedule of some kind.
SURVIVING TWO THRIVING...with L1cam Syndrome 