Tag Archives: Joy

“I’ll Run with You”

  The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels.  When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys. 

Posted in A Life Worth Living | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times.   Some say it’s whatever road you choose to follow.  Whether good or bad, YOU choose!  I … Continue reading

Posted in A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness | Tagged , , , , , , , , , , , , , , , , | 1 Comment

Acceptance and the LOVE of Football

  We all want to be accepted for who we are in this life.  Right? As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , , | 1 Comment

The Sweetest Words Ever Spoken

  I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

Posted in Parenting, Thankfulness, Uncategorized | Tagged , , , , , , , , | Leave a comment

My Kind Of RARE

 Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love two special RARE people in this life.  This RARE condition is a chromosome disorder of the L1cam gene and it’s a … Continue reading

Posted in Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

Blind

I think I am drowning in my own sorrow.  I’m the lady who can handle everything that comes her way…. ya, NOT so much! I am drowning.  I pick myself up off the ground every single day hoping that I … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

Stress Free For A Day

Today has been a stress free day, Imagine that! I have done absolutely nothing. HaHa! I have so much on my To-Do List but I took advantage of this beautiful day and decided to just sit back and laugh, play, … Continue reading

Posted in Feedings, Gastrostomy | Tagged , , , , , , | Leave a comment