I can’t believe that it’s been five years since I held him in my arms. He ran to Jesus at 8:30pm this very night. I believe he would have skipped over the crawling and/or walking stage as he entered Heaven and just took off running. Fourteen years of being a paraplegic, I definitely would.I can just hear the shouting as he entered the gates.
Loving someone who is RARE is a precious honor. I am thankful God has given me the privilege to love 2 special RARE people in this life. This RARE condition is a Chromosome and Neurological Disorder called L1 Syndrome. The ins and outs of daily struggles makes it worthwhile when the smallest little grin comes across their face or hearing the laughter and seeing the silly faces they make when they think no one is watching or listening or even signing a new sign after teaching it to them over and over and over again and you feel like your not winning this battle and all of a sudden…. he signs….
A tear silently rolled down my cheek as I opened a letter that was addressed to my son today. I looked at my husband and said, “I’m sure he could care less about his Medicaid and everything going on in this world today because he is free of all the chaos and why would the State want to send a letter in the mail for him to vote? Do they not know that almost four years ago our precious son went to Heaven? Does the State not realize that they didn’t care about him alive so why would they care now that he is gone?”
I will probably never understand Seizures. Every time Brandon had one, It would throw him back into learning what he had just learned. It broke my heart to see him in such distress when I couldn’t do anything about it. He would be unconscious for days.