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Epilepsy

November is Epilepsy Awareness Month. The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy : any of various disorders marked by abnormal electrical discharges in the brain and typically manifested by sudden brief episodes of altered or diminished consciousness, involuntary movements, or convulsions.

Category: Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized Tags: awareness, brain, brain activity, chirldrens hospital, convulsions, definition, Epilepsy, episodes, Faith, fatigue, flying, grand mal, Health, hospital, hours, jet, journey, medical, medical condition, medication, minutes, muscle spasms, praying, seizing, seizure, Seizures, serious, sleepless nights, tonic clonic, understanding, worried, worry

Simply Amazing!

It has been an “OK” day. Brently had surgery 2 weeks ago this past Monday. He had to have a G-tube – (feeding tube) revision because of infection that spread throughout his abdomen due to some complications in changing out the tube. He is home bound for 5 more weeks due to more infection and I can’t risk him getting any worse.

Category: Feedings, Gastrostomy Tags: #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, diagnosis, disability, Encouragement, Faith, family, genetics, Hardship, Health, Hope, Hydrocephalus, L1syndrome, life, living, Love, love of a child, sick, Special Needs, stress, surviving, thriving, VP Shunt, X-linked