Tag Archives: Hardship

Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)? It is what my child has been diagnosed with. The medical term is a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , | Leave a comment

Blind

I think I am drowning in my own sorrow.  I’m the lady who can handle everything that comes her way…. ya, NOT so much! I am drowning.  I pick myself up off the ground every single day hoping that I … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

God’s Plan

Today has been another “ok” day.  Brent is so ready to get back in the swing of things with going to school and doing his routine.  He loves a schedule and if it gets off track, he does not like … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Hope Anchors The Soul

I am numb.  I don’t have any words of wisdom or encouragement for myself or to give anyone this very minute. My brain is trying to stay positive but in my heart I know that another battle is about to … Continue reading

Posted in Faith, Feedings, Gastrostomy | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

Aphasia

a·pha·sia is the loss of ability to understand or express speech, caused by brain damage.   Aphasia gets in the way of a person’s ability to use or understand words. Aphasia does not impair the person’s intelligence. People who have aphasia … Continue reading

Posted in Disability, L1syndrome | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

Spastic Paraplegic (SPG1)/Shuffling Gait

Hereditary spastic paraplegia  is a general term for an expanding group of rare genetic disorders characterized by slowly progressive weakness (paraplegia) and increased muscle tone and stiffness (spasticity) of leg muscles. Other symptoms can occur in the pure subtypes including … Continue reading

Posted in Disability, L1syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Just another ER visit…..

It has been a full day at the Emergency Room at the Children’s Hospital.  I do not understand why things happen the way that they do but there is a reason of some sort for it.  I am looking for … Continue reading

Posted in Hospitalization | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment