Tag Archives: Grieving

Missing the Man Called Daddy and Paw-Paw

I never dreamed this emergency room visit would be our last. A statement that I have always heard through the years is that “a person never realizes what they have until it is gone”. Well, tonight I completely had a … Continue reading

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Mail For You….

A tear silently rolled down my cheek as I opened a letter that was addressed to my son today. I looked at my husband and said, “I’m sure he could care less about his Medicaid and everything going on in this … Continue reading

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Spastic Paraplegic (SPG1)/Shuffling Gait

Hereditary spastic paraplegia  is a general term for an expanding group of rare genetic disorders characterized by slowly progressive weakness (paraplegia) and increased muscle tone and stiffness (spasticity) of leg muscles. Other symptoms can occur in the pure subtypes including … Continue reading

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Choose Joy!

Brent started off his day today not feeling good.  He has been very quite.  As the day went on, his Aide came today also and he cheered up some.  We have a new Aide and she is doing a wonderful … Continue reading

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When you wake…..

I will probably never understand Seizures. Every time Brandon had one, It would throw him back into learning what he had just learned. It broke my heart to see him in such distress when I couldn’t do anything about it. … Continue reading

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Being Accepted

It has been 20 years since I have been out of school and nothing has changed about Special Needs… I will probably make some people upset but ya know, it does hurt to know that special needs children are left … Continue reading

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Mixed Emotions

I ask myself these questions from time to time now.  How does one celebrate for one child and still continue to mourn the loss of another child?  Can I be still be happy for the one I still have here … Continue reading

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