November is Epilepsy Awareness Month. The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy : any of various disorders marked by abnormal electrical discharges in the brain and typically manifested by sudden brief episodes of altered or diminished consciousness, involuntary movements, or convulsions.
Category: Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized Tags: awareness, brain, brain activity, chirldrens hospital, convulsions, definition, Epilepsy, episodes, Faith, fatigue, flying, grand mal, Health, hospital, hours, jet, journey, medical, medical condition, medication, minutes, muscle spasms, praying, seizing, seizure, Seizures, serious, sleepless nights, tonic clonic, understanding, worried, worry
The song “I’ll Run with you” is one of my favorites that is sung by Broken Vessels. When I first heard it, I knew I wanted to make a video of some of my favorite pics of the boys.
Category: A Life Worth Living Tags: #l1cam, #l1strong, #thankful, Faith, Heaven, Hope, I'll Run with You, Joy, L1syndrome, Laughter, Love, love of a child, Mom, Mommy Time, Music, Seizures, Special Needs, surviving, thriving, X-linked
Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times. Some say it’s whatever road you choose to follow. Whether good or bad, YOU choose! I think that God somehow, someway saw fit that He chose me for this specific unique life with my boys.
Category: A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness Tags: #l1cam, #thankful, anxiety, better me, death, depression, Encouragement, Faith, Hope, Jesus, Joy, love of a child, Mom, Special Needs, surviving, thriving
We all want to be accepted for who we are in this life. Right? As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than at church) Ha Ha! Some of Brent’s classmates, his teacher and coach, all came over to our home, as well as the local newspaper, and presented him with a team jersey. Go… Read More
Category: Uncategorized Tags: #l1cam, #l1strong, #raredisease, #thankful, Acceptance, awareness, diagnosis, disability, Encouragement, Faith, family, football, friendships, Hope, Joy, L1syndrome, Laughter, life, Love, love of a child, Special Needs, surviving, X-linked
What is (CVI) Cortical Vision Impairment? It is what my child has been diagnosed with. The medical term from childrenshospital.org is: Cortical Visual Impairment (CVI) is the most common cause of permanent visual impairment in children (1-3). The diagnosis of CVI is indicated for children showing abnormal visual responses that cannot be attributed to the eyes themselves. Brain dysfunction must explain the abnormal visual responses, as abnormal ocular structures, abnormal eye movements, and… Read More
Category: Uncategorized Tags: #l1cam, #l1strong, awareness, CVI, disability, Encouragement, Faith, Hardship, Hope, life, Special Needs, surviving, thriving, VISION