Archives

Missing the Man Called Daddy and Paw-Paw

I never dreamed this emergency room visit would be our last. A statement that I have always heard through the years is that “a person never realizes what they have until it is gone”. Well, tonight I completely had a meltdown. I believe that statement is true. I was wanting my dad to come back and tell me that he was no longer sick, and that he was going to take my… Read More

Category: Surviving TWO Thriving Tags: #cancer, #grief, #griefjourney, #lovedones, #lungcancer, #memories, #missingyou, bereavement, death, family, Grieving, Heaven, loss

Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times. Some say it’s whatever road you choose to follow. Whether good or bad, YOU choose! I think that God somehow, someway saw fit that He chose me for this specific unique life with my boys.

Category: A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness Tags: #l1cam, #thankful, anxiety, better me, death, depression, Encouragement, Faith, Hope, Jesus, Joy, love of a child, Mom, Special Needs, surviving, thriving

Mail For You….

A tear silently rolled down my cheek as I opened a letter that was addressed to my son today. I looked at my husband and said, “I’m sure he could care less about his Medicaid and everything going on in this world today because he is free of all the chaos and why would the State want to send a letter in the mail for him to vote? Do they not know that almost… Read More

Category: Loss, Death of a child Tags: death, Grieving, Heaven, Hope, Laughter, Love, love of a child, mail

When you wake…..

I will probably never understand Seizures. Every time Brandon had one, It would throw him back into learning what he had just learned. It broke my heart to see him in such distress when I couldn’t do anything about it. He would be unconscious for days.

Category: Disability, L1syndrome, Hospitalization, Seizures Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, death, depression, diagnosis, disability, Encouragement, Epilepsy, Faith, genetics, Grieving, Hardship, Heaven, Hope, Hydrocephalus, life, Love, love of a child, Mom, PTSD, Seizures, Special Needs, stress, surviving, thriving, X-linked

Being Accepted

It has been 20 years since I have been out of school and nothing has changed about Special Needs… I will probably make some people upset but ya know, it does hurt to know that special needs children are left out of everything. The only thing they get to look forward to is Special Olympics that happens once a year. There should be more structure and involvement within the school system and… Read More

Category: Acceptance Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, better me, Chromosomes, death, depression, diagnosis, disability, Encouragement, Faith, family, friendships, genetics, Grieving, Hardship, Hope, Hydrocephalus, Joy, life, living, Love, love of a child, Mom, Special Needs, surviving, thriving, X-linked