Tag Archives: better me

Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times.   Some say it’s whatever road you choose to follow.  Whether good or bad, YOU choose!  I … Continue reading

Posted in A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness | Tagged , , , , , , , , , , , , , , , , | 1 Comment

My Kind Of RARE

 Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love two special RARE people in this life.  This RARE condition is a chromosome disorder of the L1cam gene and it’s a … Continue reading

Posted in Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

God’s Plan

Today has been another “ok” day.  Brent is so ready to get back in the swing of things with going to school and doing his routine.  He loves a schedule and if it gets off track, he does not like … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Feeding Tube Awareness

Placing a feeding tube is a relatively simple surgery, but it is only recommended for complex conditions. Tube feeding is a way to provide nutrition to people who cannot or will not eat and/or drink enough to keep their body … Continue reading

Posted in Feedings, Gastrostomy | Tagged , , , , , , , , , , , , , , , , | Leave a comment

Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in.  I had to take Brent to the Doctor today.  He had a blockage and I just … Continue reading

Posted in Faith, Hardship, Parenting, Special Needs, L1Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Choose Joy!

Brent started off his day today not feeling good.  He has been very quite.  As the day went on, his Aide came today also and he cheered up some.  We have a new Aide and she is doing a wonderful … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Being Accepted

It has been 20 years since I have been out of school and nothing has changed about Special Needs… I will probably make some people upset but ya know, it does hurt to know that special needs children are left … Continue reading

Posted in Acceptance | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment