We are definitely battling with the feeding tube on a daily basis. But, what’s new? I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha. It has been 18 years. What is up with that? I should have a medical degree of some sort by now. Don’t you agree?
I never dreamed I would hear him say it. As a mom of a child with special needs, I can say that this was so rewarding for me and for him.
What is (CVI) Cortical Vision Impairment? It is what my child has been diagnosed with.
The medical term from childrenshospital.org is:
- Cortical Visual Impairment (CVI) is the most common cause of permanent visual impairment in children (1-3). The diagnosis of CVI is indicated for children showing abnormal visual responses that cannot be attributed to the eyes themselves. Brain dysfunction must explain the abnormal visual responses, as abnormal ocular structures, abnormal eye movements, and refractive error do not. Fixation and following, even to intense stimulation, may be poor and the child does not respond normally to people’s faces. Visual regard and reaching (in the child with motor capabilities) toward objects is absent.
So, this means basically that Brent is blind. Blind only in his right eye so I am thankful that he still can see good in his left eye. With the diagnosis, comes Vision Therapy!
Budd–Chiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal pain. It is caused by blood clots that completely or partially block blood flow from the liver. It usually occurs when a clot narrows or blocks the hepatic veins, which carry blood out of the liver.