SURVIVING TWO THRIVING...with L1cam Syndrome
For I consider the sufferings of this present time are NOT worthy to be compared to the GLORY that is to be revealed in us. Romans 8:18
Brent has a hole in his G-tube! I have been on the phone talking to 10 different people who have no clue of what they’re doing …….. ugh!!!!!!! You would think...
Brently Matthew What I love most is that he smiles through it all. The good, the bad, & the ugly. He has attitude and loves to sing and play his instruments....
When your child dies, the pain and devastation of your loss can feel overwhelming. Some of the immediate emotions in grief are shock, numbness, denial, confusion and disbelief, all of which...
This guy right here made me the mom I am today. With multiple brain surgeries, feeding tubes, feeding pumps, hip surgery, multiple tendon releases in each leg and foot, (VNS) Vagus...
Tonight, I sit here thinking of all the what if’s, what could have been’s, and I don’t know why I allow my mind to go in that direction. Brent is 15...
SURVIVING TWO THRIVING...with L1cam Syndrome 