November is Epilepsy Awareness Month. The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy : any of various disorders marked by abnormal electrical discharges in the brain and...
Category: Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized Tags: awareness, brain, brain activity, chirldrens hospital, convulsions, definition, Epilepsy, episodes, Faith, fatigue, flying, grand mal, Health, hospital, hours, jet, journey, medical, medical condition, medication, minutes, muscle spasms, praying, seizing, seizure, Seizures, serious, sleepless nights, tonic clonic, understanding, worried, worry
I can’t believe that it’s been five years since I held him in my arms. He ran to Jesus at 8:30pm this very night. I believe he would have skipped over...
Category: Uncategorized Tags: #l1cam, #l1strong, #specialneeds, a time for everthing, brotherly love, disability, God's time, healing, Heaven, hurting, leaning on His promises, Love, purpose, thebookofecclesiates
We all want to be accepted for who we are in this life. Right? As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen...
Category: Uncategorized Tags: #l1cam, #l1strong, #raredisease, #thankful, Acceptance, awareness, diagnosis, disability, Encouragement, Faith, family, football, friendships, Hope, Joy, L1syndrome, Laughter, life, Love, love of a child, Special Needs, surviving, X-linked
We are definitely battling with the feeding tube on a daily basis. But, what’s new? I was sitting here pondering on how long it has been that I learned how to...
Category: Uncategorized Tags: #l1cam, #l1strong, diagnsosis, disability, feeding, FEEDING tube, L1syndrome, life, multiple diagnosis, Music, tubies
I never dreamed I would hear him say it. As a mom of a child with special needs, I can say that this was so rewarding for me and for...
Category: Parenting, Thankfulness, Uncategorized Tags: #l1cam, #l1strong, #thankful, Encouragement, Joy, Laughter, love of a child, SPEAK, Special Needs