Category Archives: Uncategorized

Epilepsy

 November is Epilepsy Awareness Month.    The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy  : any of various disorders marked by abnormal electrical discharges in the brain and typically manifested by sudden brief episodes of altered or … Continue reading

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Missing You: God’s Timing

I can’t believe that it’s been five years since I held him in my arms.  He ran to Jesus at 8:30pm this very night. I believe he would have skipped over the crawling and/or walking stage as he entered Heaven … Continue reading

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Acceptance and the LOVE of Football

  We all want to be accepted for who we are in this life.  Right? As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than … Continue reading

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Feeding Tube Awareness 2018

We are definitely battling with the feeding tube on a daily basis.  But, what’s new?  I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say … Continue reading

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The Sweetest Words Ever Spoken

  I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

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Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)? It is what my child has been diagnosed with. The medical term is a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process … Continue reading

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My Kind Of RARE

 Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love two special RARE people in this life.  This RARE condition is a chromosome disorder of the L1cam gene and it’s a … Continue reading

Posted in Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment