Special Needs, L1Syndrome | SURVIVING TWO THRIVING...with L1cam Syndrome

Epilepsy

November is Epilepsy Awareness Month. The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy : any of various disorders marked by abnormal electrical discharges in the brain and...

Category: Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized Tags: awareness, brain, brain activity, chirldrens hospital, convulsions, definition, Epilepsy, episodes, Faith, fatigue, flying, grand mal, Health, hospital, hours, jet, journey, medical, medical condition, medication, minutes, muscle spasms, praying, seizing, seizure, Seizures, serious, sleepless nights, tonic clonic, understanding, worried, worry

Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times. Some say it’s whatever road you choose...

Category: A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness Tags: #l1cam, #thankful, anxiety, better me, death, depression, Encouragement, Faith, Hope, Jesus, Joy, love of a child, Mom, Special Needs, surviving, thriving

My Kind Of RARE

Loving someone who is RARE is a precious honor. I am thankful God has given me the privilege to love two special RARE people in this life. This RARE condition is a...

Category: Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, #thankful, awareness, better me, Chromosomes, family, Heaven, Hope, Hydrocephalus, Joy, Laughter, life, Love, love of a child, Special Needs, surviving, thriving, X-linked

X-linked Hydrocephlaus

X-linked hydrocephalus (L1 syndrome) **September is Hydrocephalus Awareness month** The Hydrocephalus Association describes X-Linked Hydrocephalus and Finding our way with L1cam! Check it out!! Hydrocephalus comes from the Greek words hydro meaning water...

Category: Disability, L1syndrome, Special Needs, L1Syndrome Tags: #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, diagnosis, disability, Encouragement, Faith, genetics, Hope, Hydrocephalus, life, living, Love, love of a child, Seizures, Special Needs, stress, surviving, thriving, X-linked