Siblings, Same Diagnosis | SURVIVING TWO THRIVING...with L1cam Syndrome

My Kind Of RARE

Loving someone who is RARE is a precious honor. I am thankful God has given me the privilege to love two special RARE people in this life. This RARE condition is a...

Category: Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, #thankful, awareness, better me, Chromosomes, family, Heaven, Hope, Hydrocephalus, Joy, Laughter, life, Love, love of a child, Special Needs, surviving, thriving, X-linked

My Kind of RARE

Loving someone who is RARE is a precious honor. I am thankful God has given me the privilege to love 2 special RARE people in this life. This RARE condition is...

Category: Disability, L1syndrome, Siblings, Same Diagnosis, Special Needs, L1Syndrome