Category Archives: Parenting

Epilepsy

 November is Epilepsy Awareness Month.    The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy  : any of various disorders marked by abnormal electrical discharges in the brain and typically manifested by sudden brief episodes of altered or … Continue reading

Posted in Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

The Sweetest Words Ever Spoken

  I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

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My Kind Of RARE

 Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love two special RARE people in this life.  This RARE condition is a chromosome disorder of the L1cam gene and it’s a … Continue reading

Posted in Acceptance, Faith, Parenting, Siblings, Same Diagnosis, Special Needs, L1Syndrome, Thankfulness, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in.  I had to take Brent to the Doctor today.  He had a blockage and I just … Continue reading

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Thankful

As this years 2014 Thanksgiving rolls around, my mind drifts throughout each day of how thankful I am. There are so many things that have come my way and so many people in and out of my life that have … Continue reading

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L1 Family

I never thought I would see the day of being able to meet other families that walk in my shoes daily.  For so long I begged and pleaded with God to help me find someone…surely I can’t be the only … Continue reading

Posted in Disability, L1syndrome, L1 Families, L1 Syndrome, Parenting, Special Needs, L1Syndrome, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Keep Holding On…

As I look back at these posts that I wrote before I started blogging, I see how scary things were.  I never got scared “in the moment” of an episode.  I would always hold on til the episode ended and … Continue reading

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