Hospitalization | SURVIVING TWO THRIVING...with L1cam Syndrome

Epilepsy

November is Epilepsy Awareness Month. The Merriam-Webster dictionary gives this definition of the word Epilepsy. Definition of epilepsy : any of various disorders marked by abnormal electrical discharges in the brain and...

Category: Faith, Hospitalization, Loss, Death of a child, Parenting, Seizures, Special Needs, L1Syndrome, Uncategorized Tags: awareness, brain, brain activity, chirldrens hospital, convulsions, definition, Epilepsy, episodes, Faith, fatigue, flying, grand mal, Health, hospital, hours, jet, journey, medical, medical condition, medication, minutes, muscle spasms, praying, seizing, seizure, Seizures, serious, sleepless nights, tonic clonic, understanding, worried, worry

Just another ER visit…..

It has been a full day at the Emergency Room at the Children’s Hospital. I do not understand why things happen the way that they do but there is a reason...

Category: Hospitalization Tags: #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, diagnosis, disability, Encouragement, FEEDING tube, genetics, Hardship, Hope, Hydrocephalus, life, Love, love of a child, sick, Special Needs, stress, surviving, thriving, X-linked

When you wake…..

I will probably never understand Seizures. Every time Brandon had one, It would throw him back into learning what he had just learned. It broke my heart to see him in...

Category: Disability, L1syndrome, Hospitalization, Seizures Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, death, depression, diagnosis, disability, Encouragement, Epilepsy, Faith, genetics, Grieving, Hardship, Heaven, Hope, Hydrocephalus, life, Love, love of a child, Mom, PTSD, Seizures, Special Needs, stress, surviving, thriving, X-linked