Hardship | SURVIVING TWO THRIVING...with L1cam Syndrome

Right in the middle of it all, There Is Jesus!

Life has a way of lifting you up in the most exciting times and tear you down in some of the most horrific times. Some say it’s whatever road you choose...

Category: A Life Worth Living, Faith, Hardship, Loss, Death of a child, Special Needs, L1Syndrome, Thankfulness Tags: #l1cam, #thankful, anxiety, better me, death, depression, Encouragement, Faith, Hope, Jesus, Joy, love of a child, Mom, Special Needs, surviving, thriving

Budd-Chiari Syndrome

Budd–Chiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal...

Category: Faith, Hardship Tags: diagnosis, Encouragement, Faith, Hope, Love, sick, Special Needs, surviving

Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in. I had to take Brent to the...

Category: Faith, Hardship, Parenting, Special Needs, L1Syndrome Tags: #l1cam, #l1strong, anxiety, awareness, better me, Chromosomes, devastation, diagnosis, disability, Encouragement, FEEDING tube, food, formula, genetics, Hardship, Hope, life, Love, love of a child, Mom, sick, Special Needs, stress, surviving, thriving

God’s Plan

Today has been another “ok” day. Brent is so ready to get back in the swing of things with going to school and doing his routine. He loves a schedule and...

Category: Disability, L1syndrome, Faith, Hardship, Special Needs, L1Syndrome