SURVIVING TWO THRIVING...with L1cam Syndrome

Today has been a stress free day, Imagine that! I have done absolutely nothing. HaHa! I have so much on my To-Do List but I took advantage of this beautiful day...

I am numb.  I don’t have any words of wisdom or encouragement for myself or to give anyone this very minute. My brain is trying to stay positive but in my...

Placing a feeding tube is a relatively simple surgery, but it is only recommended for complex conditions. Tube feeding is a way to provide nutrition to people who cannot or will...

It has been an “OK” day.  Brently had surgery 2 weeks ago this past Monday.  He had to have a G-tube – (feeding tube) revision because of infection that spread throughout his...

Brent has a hole in his G-tube! I have been on the phone talking to 10 different people who have no clue of what they’re doing …….. ugh!!!!!!! You would think...