Faith | SURVIVING TWO THRIVING...with L1cam Syndrome

Hope Anchors The Soul

I am numb. I don’t have any words of wisdom or encouragement for myself or to give anyone this very minute. My brain is trying to stay positive but in my...

Category: Faith, Feedings, Gastrostomy Tags: #l1cam, #l1strong, anxiety, awareness, diagnosis, disability, Encouragement, Faith, FEEDING tube, genetics, gtube, Hardship, Hope, Love, Special Needs, surviving, thriving, wisdom

Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in. I had to take Brent to the...

Category: Faith, Hardship, Parenting, Special Needs, L1Syndrome Tags: #l1cam, #l1strong, anxiety, awareness, better me, Chromosomes, devastation, diagnosis, disability, Encouragement, FEEDING tube, food, formula, genetics, Hardship, Hope, life, Love, love of a child, Mom, sick, Special Needs, stress, surviving, thriving

Mixed Emotions

I ask myself these questions from time to time now. How does one celebrate for one child and still continue to mourn the loss of another child? Can I be still...

Category: Faith, Loss, Death of a child Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, death, depression, diagnosis, disability, Encouragement, Faith, family, genetics, Grieving, Hardship, Hope, Hydrocephalus, life, living, Love, love of a child, Mom, PTSD, Special Needs, stress, surviving, thriving, X-linked

Thankful

As this years 2014 Thanksgiving rolls around, my mind drifts throughout each day of how thankful I am. There are so many things that have come my way and so many...

Category: Faith, Parenting, Thankfulness Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, #thankful, awareness, better me, Chromosomes, diagnosis, disability, Encouragement, Faith, family, friendships, fun times, genetics, Grieving, Hardship, Heaven, Hope, Hydrocephalus, Joy, Laughter, life, living, Love, love of a child, Mom, Special Needs, stress, surviving, thriving

God’s Plan

Today has been another “ok” day. Brent is so ready to get back in the swing of things with going to school and doing his routine. He loves a schedule and...

Category: Disability, L1syndrome, Faith, Hardship, Special Needs, L1Syndrome