Today has been another “ok” day. Brent is so ready to get back in the swing of things with going to school and doing his routine. He loves a schedule and...
Category: Disability, L1syndrome, Faith, Hardship, Special Needs, L1Syndrome
I never thought I would see the day of being able to meet other families that walk in my shoes daily. For so long I begged and pleaded with God to...
Category: Disability, L1syndrome, L1 Families, L1 Syndrome, Parenting, Special Needs, L1Syndrome, Uncategorized Tags: #globalgenes, #hydrocephalusawareness, #l1cam, #l1strong, #thankful, awareness, better me, Chromosomes, diagnosis, disability, Encouragement, Faith, family, friendships, fun times, genetics, Hope, Hydrocephalus, Joy, Laughter, life, living, Love, love of a child, Mom, Mommy Time, PTSD, Seizures, sick, Special Needs, surviving, thriving, X-linked