Author: Tonya Aycock

Hi, my name is Tonya. I am a wife, mom of two children (Brandon & Brently). I am a born again christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love Singing. I was in a Southern Gospel Group for about 3 years and I enjoyed every minute of it. I think most of all besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my country home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer’s are absolutely beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl so let’s just say I am adjusting to the country life well. Ha ha! Another interesting thing about my husband and I, is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life, (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving 2 thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and for my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, and encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful messy life!

My Kind of RARE

Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love 2 special RARE people in this life.  This RARE condition is a Chromosome and Neurological Disorder called L1 Syndrome.

God’s Plan

Today has been another “ok” day.  Brent is so ready to get back in the swing of things with going to school and doing his routine.  He loves a schedule and if it gets off track, he does not like it. He is thriving and I am so happy for him that he is still fighting his disability He is one tough teenager!  I am ready to get past all the medical things I have been going through also.  There are so many people in the world hurting tonight.. Some have a disease that is taking control over their bodies and they have no control over it and are struggling with answers as to why this is all happening.  Some are in the hospital fighting for their life due to something they never thought would happen to them.  Others are addicted to drugs and alcohol and some choose to stay that way and others are wanting a better life for themselves.  No matter the circumstance of the battle you are in, God has a plan.

I have learned that there is no amount of struggle or hardship that God can’t control.  If you are a believer then you should never doubt.  I seen on Facebook the other day that a friend had posted about Fervent Prayer.  I am wanting to do this and learn exactly what Fervent Prayer is.  I want to be a better mom to my son.  I want to be a better wife for my husband.  I want to be a better friend…. I want to be a God-fearing Christian woman who is Christ-like.  God said he would supply your every need.

L1 Family

I never thought I would see the day of being able to meet other families that walk in my shoes daily.  For so long I begged and pleaded with God to help me find someone…surely I can’t be the only one in the world?

Keep Holding On…

As I look back at these posts that I wrote before I started blogging, I see how scary things were.  I never got scared “in the moment” of an episode.  I would always hold on til the episode ended and then I would lose it.  I wanted to be strong for my Brandon and wanted him to feel safe and that I was taking care of him the best I knew how. I kept holding on…..

Feeding Tube Drama

Brent has a hole in his G-tube! I have been on the phone talking to 10 different people who have no clue of what they’re doing …….. ugh!!!!!!! You would think after having a feeding tube for 14 years that it would be a piece of cake dealing with these companies… *SCREAM* ‪#‎feedingtubeissues‬ [ it never ends…. ]

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