Author: Tonya Aycock

Hi, my name is Tonya. I am a wife, mom of two children (Brandon & Brently). I am a born again christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love Singing. I was in a Southern Gospel Group for about 3 years and I enjoyed every minute of it. I think most of all besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my country home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer’s are absolutely beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl so let’s just say I am adjusting to the country life well. Ha ha! Another interesting thing about my husband and I, is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life, (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving 2 thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and for my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, and encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful messy life!

Being Accepted

It has been 20 years since I have been out of school and nothing has changed about Special Needs… I will probably make some people upset but ya know, it does hurt to know that special needs children are left out of everything. The only thing they get to look forward to is Special Olympics that happens once a year.  There should be more structure and involvement within the school system and with the typical children as well. Their should be churches willing to go the extra mile to help a person that has special needs regardless of the disability if in a wheelchair or not.  Everyone is always talking about how great their school and church is but no one is helping the ones that need it most.  Where is the love in that??  God knows my heart and knows how this hurts me and other parents when their children feel alone. I am not saying that my child feels alone. My child is non-verbal.  I am making a point that if you are gonna brag about how well your school system is, then mention the Special Needs classes as well and give funds to help that department as well. Include these kids as much as you do the typical!  I understand that life is not fair. I am just tired of these children being left out.  In my opinion it’s just not right!  


My prayer is that people will be willing to open their eyes and see that children with special needs are just as important as typical children. I have learned through the years having both of my boys that patience is a must! If people would just slow down and listen and pray and give their all for: 1) to God. 2) their family. 3) church. 4) ALL Education including Special Education, I believe you would see more parents bringing their children to church and being involved but it will not happen unless we as a whole reach out and let parents know that they are welcomed and included within the schools and church.


This is how my heart feels today.

I pray God will soften the hearts of the ones that see no need in these situations and that He would give them a heart and desire to include these precious children, parents, and adults and not leave them out just because they have a disability. I pray also that God would allow me to continue being an advocate and never allow me to give up and to stand in what I believe in and through Him and for Him alone to receive the Glory for it all. God, You gave me children that face a constant battle everyday with no cure and I am thankful everyday for that because You keep me grounded in Your Word.  One is now completely healed.  One is continuing to struggle with life and God, it’s not easy.  You never said it was going to be but, You are there to walk with me through times like these and I again am so thankful because I can’t do this alone. I pray for the parents that struggle daily with the needs of their children and the adults that need help physically and are not accepted.  God, cover us with Your loving arms and help us to feel you as you surround us in our daily task.  It’s in Jesus Name that I pray, Amen!

Mixed Emotions

I ask myself these questions from time to time now.  How does one celebrate for one child and still continue to mourn the loss of another child?  Can I be still be happy for the one I still have here with me?  Will this sadness linger on forever?

Thankful

As this years 2014 Thanksgiving rolls around, my mind drifts throughout each day of how thankful I am. There are so many things that have come my way and so many people in and out of my life that have meant so much to me and that I am thankful for.

My Kind of RARE

Loving someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love 2 special RARE people in this life.  This RARE condition is a Chromosome and Neurological Disorder called L1 Syndrome.

God’s Plan

Today has been another “ok” day.  Brent is so ready to get back in the swing of things with going to school and doing his routine.  He loves a schedule and if it gets off track, he does not like it. He is thriving and I am so happy for him that he is still fighting his disability He is one tough teenager!  I am ready to get past all the medical things I have been going through also.  There are so many people in the world hurting tonight.. Some have a disease that is taking control over their bodies and they have no control over it and are struggling with answers as to why this is all happening.  Some are in the hospital fighting for their life due to something they never thought would happen to them.  Others are addicted to drugs and alcohol and some choose to stay that way and others are wanting a better life for themselves.  No matter the circumstance of the battle you are in, God has a plan.

I have learned that there is no amount of struggle or hardship that God can’t control.  If you are a believer then you should never doubt.  I seen on Facebook the other day that a friend had posted about Fervent Prayer.  I am wanting to do this and learn exactly what Fervent Prayer is.  I want to be a better mom to my son.  I want to be a better wife for my husband.  I want to be a better friend…. I want to be a God-fearing Christian woman who is Christ-like.  God said he would supply your every need.

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