Author: Tonya Aycock

Hi, my name is Tonya. I am a wife, mom of two children (Brandon & Brently). I am a born again christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love Singing. I was in a Southern Gospel Group for about 3 years and I enjoyed every minute of it. I think most of all besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my country home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer’s are absolutely beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl so let’s just say I am adjusting to the country life well. Ha ha! Another interesting thing about my husband and I, is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life, (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving 2 thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and for my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, and encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful messy life!

Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)?

It is what my child has been diagnosed with.

The medical term is

  • a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process that damages the visual parts of the brain.

So, this means basically that Brent is blind.  Blind only in his right eye so I am thankful that he still can see good in his left eye.  With the diagnosis, comes Vision Therapy!

Budd-Chiari Syndrome

BuddChiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal pain. It is caused by blood clots that completely or partially block blood flow from the liver. It usually occurs when a clot narrows or blocks the hepatic veins, which carry blood out of the liver.

My Kind Of RARE

 Loving2016-02-09 17.05.06 someone who is RARE is a precious honor.  I am thankful God has given me the privilege to love 2 special RARE people in this life.  This RARE condition is a Chromosome and Neurological Disorder called L1 Syndrome. The ins and outs of daily struggles makes it worthwhile when the smallest little grin comes across their face or hearing the laughter and seeing the silly faces they make when they think no one is watching or listening or even signing a new sign after teaching it to them over and over and over again and you feel like your not winning this battle and all of a sudden…. he signs….

Blind

I think I am drowning in my own sorrow.  I’m the lady who can handle everything that comes her way…. ya, NOT so much! I am drowning.  I pick myself up off the ground every single day hoping that I have made some sort of difference in a person’s life.  My son’s life. His life matters! Brently’s life does matter!  He has a purpose! God says he does. (Jer. 29:11)

“In The Garden”

This was an amazing night.  Several Southern Gospel Groups, including Saving Faith (the group I sang with), got together and had a benefit singing to raise money for the David Zills Memorial Fund for ALS.   I enjoyed singing with Broken Vessels that night several years ago.  I came across this video and wanted to share.

“In The Garden”

ENJOY!

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