Author: Tonya Aycock

Hi, my name is Tonya. I am a wife, mom of two children (Brandon & Brently). I am a born again christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love Singing. I was in a Southern Gospel Group for about 3 years and I enjoyed every minute of it. I think most of all besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my country home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer’s are absolutely beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl so let’s just say I am adjusting to the country life well. Ha ha! Another interesting thing about my husband and I, is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life, (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving 2 thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and for my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, and encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful messy life!

Acceptance and the LOVE of Football

 

We all want to be accepted for who we are in this life.  Right?

As a special needs mom, I want this for my son. ACCEPTANCE. I have never seen him so excited than this very day (other than at church) Ha Ha! Some of Brent’s classmates, his teacher and coach, all came over to our home, as well as the local newspaper, and presented him with a team jersey. Go Lions!

Feeding Tube Awareness 2018

We are definitely battling with the feeding tube on a daily basis.  But, what’s new?  I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha.  It has been 18 years. What is up with that? I should have a medical degree of some sort by now.  Don’t you agree?

The Sweetest Words Ever Spoken

 

I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)?

It is what my child has been diagnosed with.

The medical term is

  • a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process that damages the visual parts of the brain.

So, this means basically that Brent is blind.  Blind only in his right eye so I am thankful that he still can see good in his left eye.  With the diagnosis, comes Vision Therapy!

Budd-Chiari Syndrome

BuddChiari syndrome is a very rare condition. It is an uncommon condition induced by thrombotic or nonthrombotic obstruction of the hepatic venous outflow and is characterized by hepatomegaly, ascites, and abdominal pain. It is caused by blood clots that completely or partially block blood flow from the liver. It usually occurs when a clot narrows or blocks the hepatic veins, which carry blood out of the liver.

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