SURVIVING TWO THRIVING...with L1cam Syndrome

Monthly Archives: February 2018

We are definitely battling with the feeding tube on a daily basis.  But, what’s new?  I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha.  It has been 18 years. What is up with that? I should have a medical degree of some sort by now.  Don’t you agree?

  I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

What is Cortical Vision Impairment (CVI)? It is what my child has been diagnosed with. The medical term is a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process that damages the visual parts of the brain. So, this means basically that Brent is blind.  Blind only in his right eye so I am thankful that he still can see good… Read More

So Greatly Loved

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Hope For The Broken Hearted

Blog by Debbie Kay, Founder of Hope For The Broken Hearted Ministries