Month: February 2018

Feeding Tube Awareness 2018

We are definitely battling with the feeding tube on a daily basis.  But, what’s new?  I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha.  It has been 18 years. What is up with that? I should have a medical degree of some sort by now.  Don’t you agree?

The Sweetest Words Ever Spoken

 

I never dreamed I would hear him say it.  As a mom of a child with special needs, I can say that this was so rewarding for me and for him.

Cortical Vision Impairment (CVI)

What is Cortical Vision Impairment (CVI)?

It is what my child has been diagnosed with.

The medical term is

  • a form of vision impairment that is caused by a brain problem rather than an eye problem.  CVI is caused by any process that damages the visual parts of the brain.

So, this means basically that Brent is blind.  Blind only in his right eye so I am thankful that he still can see good in his left eye.  With the diagnosis, comes Vision Therapy!

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