Monthly Archives: February 2018
We are definitely battling with the feeding tube on a daily basis. But, what’s new? I was sitting here pondering on how long it has been that I learned how to work with feeding tubes and I have to say that I am a genius! haha. It has been 18 years. What is up with that? I should have a medical degree of some sort by now. Don’t you agree?
I never dreamed I would hear him say it. As a mom of a child with special needs, I can say that this was so rewarding for me and for him.
What is (CVI) Cortical Vision Impairment? It is what my child has been diagnosed with. The medical term from childrenshospital.org is: Cortical Visual Impairment (CVI) is the most common cause of permanent visual impairment in children (1-3). The diagnosis of CVI is indicated for children showing abnormal visual responses that cannot be attributed to the eyes themselves. Brain dysfunction must explain the abnormal visual responses, as abnormal ocular structures, abnormal eye movements, and… Read More
SURVIVING TWO THRIVING...with L1cam Syndrome 