Daily Archives: July 20, 2016

Just another ER visit…..

It has been a full day at the Emergency Room at the Children’s Hospital. I do not understand why things happen the way that they do but there is a reason of some sort for it. I am looking for answers. I want to know why my child is hurting and no one can fix this problem.

Category: Hospitalization Tags: #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, diagnosis, disability, Encouragement, FEEDING tube, genetics, Hardship, Hope, Hydrocephalus, life, Love, love of a child, sick, Special Needs, stress, surviving, thriving, X-linked