Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in.  I had to take Brent to the Doctor today.  He had a blockage and I just knew we would end up in the hospital. They were able to do the procedure in the office and gave instructions on what to do when they sent us home.  I was a little afraid because I was thinking that the hospital would be a better choice for him.

With his condition of L1, of course, anything can happen.  I was thinking of a shunt malfunction or intestinal issues that could possibly cause organ failure.  So at this point, I can feel the anxiety creeping into my chest and shoulders.  I’m like every other parent.  I don’t like seeing my child hurt or in pain or have any kind of uncomfortable feeling.

Two weeks ago, Brently had a swallow study test done and failed it.  The muscles in his throat are too weak for him to swallow any food so the only other option is a feeding pump.  He now gets formula through his feeding pump every 4 hours.  He now is on medication for the spasticity.(tightness of the muscles).   He is not his fun, loving, crazy, teenage self with an attitude right now and it breaks my heart.  It seems he has not been himself since this drastic change.  If you know my Brently, he does not like change at all! If he could speak, he would tell you just that. haha.

I get home from the Doctor’s office and get him settled into bed to make him as comfortable as possible and do as the doctor said and within three hours, Brent started to grin again and laugh out loud.  Prayer is the lifeline to every situation you go through. Having faith knowing God will walk with you through the storm and that you are not alone and also having friends and family praying, I LOVE my prayer warriors. I could feel the love from everyone and I feel so blessed.  I know I may have said this before in a previous post but I have to say that even through the midst of pain and suffering and hardships we go through, life is still worth living.

It has been a crazy day. This is a crazy life. I don’t know what tomorrow may hold.  It could possibly be another day like today but I wouldn’t trade it for nothing because God will always get the glory no matter what happens!

I am truly blessed!

 

About Tonya Aycock

Hi, my name is Tonya. I am a wife and mom of two children (Brandon & Brently). I am a born again Christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love singing. I was in a Southern Gospel Group for about three years, and I enjoyed every minute of it. I think most of all, besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer are beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl, so let’s just say I am adjusting to the country's life well. Haha! Another exciting thing about my husband and myself is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him, I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done, and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving two thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful, messy life!
This entry was posted in Faith, Hardship, Parenting, Special Needs, L1Syndrome and tagged , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

3 Responses to Crazy Kind of Day

  1. You have such an upbeat and positive attitude. He’s lucky to have you by his side.

    Sending positive vibes.

    Like

    • Surviving-2-Thriving says:

      Thank you so much. I have found that writing is something I enjoy and need to express how day to day life really is being a mom of children with Special Needs and the in’s and out’s of all we go through..

      Like

  2. Laura says:

    Praying for your sweet family! Thank you for sharing your story

    Liked by 1 person

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