Monthly Archives: July 2016

Just another ER visit…..

It has been a full day at the Emergency Room at the Children’s Hospital. I do not understand why things happen the way that they do but there is a reason of some sort for it. I am looking for answers. I want to know why my child is hurting and no one can fix this problem.

Category: Hospitalization Tags: #hydrocephalusawareness, #l1cam, #l1strong, anxiety, awareness, Chromosomes, diagnosis, disability, Encouragement, FEEDING tube, genetics, Hardship, Hope, Hydrocephalus, life, Love, love of a child, sick, Special Needs, stress, surviving, thriving, X-linked

Crazy Kind of Day

Today has been another day of clinging on to hope and having faith that God will help us through this storm we are in. I had to take Brent to the Doctor today. He had a blockage and I just knew we would end up in the hospital. They were able to do the procedure in the office and gave instructions on what to do when they sent us home. I was… Read More

Category: Faith, Hardship, Parenting, Special Needs, L1Syndrome Tags: #l1cam, #l1strong, anxiety, awareness, better me, Chromosomes, devastation, diagnosis, disability, Encouragement, FEEDING tube, food, formula, genetics, Hardship, Hope, life, Love, love of a child, Mom, sick, Special Needs, stress, surviving, thriving