Simply Amazing!

It has been an “OK” day.  Brently had surgery 2 weeks ago this past Monday.  He had to have a G-tube – (feeding tube) revision because of infection that spread throughout his abdomen due to some complications in changing out the tube.  He is home bound for 5 more weeks due to more infection and I can’t risk him getting any worse.

 

 

While in surgery, the Dr. came out to talk with me and said “The infection has spread throughout and may have caused a Shunt problem and we need to do a series of test on his VP shunt”. My thoughts were that we just may be in for the long hall on this one…. Brently usually never gets sick and him facing these obstacles was reminding me of Brandon and all the sickness he went through so my mind was fluttering in all different directions. The tests were done and the waiting period is some of the most crucial moments. For me, it is where time stands still. I didn’t get but maybe 3 hours that night.  My mind just wouldn’t stop thinking and worrying if the shunt has malfunctioned, that is another surgery on top of all this with the G-tube. I just couldn’t sleep so I paced the floors, prayed, walked downstairs to the lobby and prayed some more and let my mind relax and focus and let God just speak to me.  We made it through the night and I couldn’t wait.  The results came back that the shunt looked good and no issues that the tubing that is connected to his brain that flows into his abdomen were functional so I was so happy and relieved and again thanked God for it all.  Even though he is a little teenager in a wheelchair and looks to be healthy, his immune system is not as strong as most but we have plans and are of course going to be careful but also have fun. He is ready to go camping and be outdoors.  We plan to travel this summer and one of the places we are excited about is Minnesota.  We are having a reunion of all the L1 syndrome families from all over the world.  14 1/2 years ago, I was told by Doctors that I was the only family to have this type of syndrome and to have 2 children at that so you can only imagine how excited we are to meet other families like ours.  Brent is loving school this year but missing being out right now due to these few steps backwards but he continues to have a smile on his face and laugh like no other! Love this boy right here! 

 

Philippians 4:6-7

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

Brently Matthew

He Is Simply Amazing!

 

About Tonya Aycock

Hi, my name is Tonya. I am a wife and mom of two children (Brandon & Brently). I am a born again Christian. My passion is raising awareness for my boys and making sure they have the very best that I can give them. I love singing. I was in a Southern Gospel Group for about three years, and I enjoyed every minute of it. I think most of all, besides the singing, I enjoyed meeting people and sharing my testimony of how God has brought me through. I love playing guitar and hearing my sweet husband play music and sing to our boys. I enjoy making crafts and designing floral arrangements. I love camping. I am always up for a new adventure! I enjoy working in my yard and anything outdoors. I love my home. I like taking pictures of God’s beautiful creation. The hummingbirds, Canadian geese, turtles, and deer are beautiful! I never dreamed that I would enjoy the country as much as I do. I have always been a city kind of girl, so let’s just say I am adjusting to the country's life well. Haha! Another exciting thing about my husband and myself is that we have always wanted to open a restaurant. Maybe one day… who knows…. I created this blog to share the in’s and out’s of daily living of being a mom of children with special needs, how life can change in an instant, losing a child, finding real friendships that live the same kind of life that I do that truly understand, and much more. I love to talk about my faith as I learn how to cope through life (good and bad) together. I want to always put complete control in my Lord and Savior, Jesus Christ, because without Him, I am nothing. My prayer is that I can somehow help someone by sharing my story. It is most definitely easier said than done, and I fail daily, but striving to make things work in a world that doesn’t understand is just one of the reasons I am here, writing and sharing my story and trying to be the best me as I can and being the best mother that my children will love and respect and see me survive and thrive as I watch them surviving two thriving in life. But, most of all that they see Jesus in me. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11 God has a plan for my life and my family as well and for who is reading this right now. I can only hope and pray that I am doing what He has called me to do…… Being a wife, mom, advocate of special needs, a friend, encourager, but most of all… a servant of His. This has been and continues to be a unique life raising my SuPeR HeRo children dancing in the rain of the beautiful, messy life!
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