SURVIVING TWO THRIVING...with L1cam Syndrome

Daily Archives: May 16, 2016

As I look back at these posts that I wrote before I started blogging, I see how scary things were.  I never got scared “in the moment” of an episode.  I would always hold on til the episode ended and then I would lose it.  I wanted to be strong for my Brandon and wanted him to feel safe and that I was taking care of him the best I knew how…. Read More

Brent has a hole in his G-tube! I have been on the phone talking to 10 different people who have no clue of what they’re doing …….. ugh!!!!!!! You would think after having a feeding tube for 14 years that it would be a piece of cake dealing with these companies… *SCREAM* ‪#‎feedingtubeissues‬ [ it never ends…. ]

So Greatly Loved

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Hope For The Broken Hearted

Blog by Debbie Kay, Founder of Hope For The Broken Hearted Ministries