SURVIVING TWO THRIVING...with L1cam Syndrome

Daily Archives: April 21, 2016

This guy right here made me the mom I am today.  With multiple brain surgeries, feeding tubes, feeding pumps, hip surgery, multiple tendon releases in each leg and foot, (VNS) Vagus Nerve surgery, 2 spinal infusions, surgery on each thumb (inward thumb/visibility of L1 syndrome), Budd-Chiari Syndrome, and numerous seizures that more than 50% of them were life threatening. He was on life support during those times.  I can truly say that this child… Read More

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